Sunday, March 9, 2014

Hope.


Hope is the most fearless person I know. Growing up as her older sister, her impuslive, spontaneous and loud energetic ways were nearly impossible to control but undeniably the most fun to have around and to get to know. My brother, Billy and I were closer in age and it usually took both of our efforts to keep her from sticking fruit snacks in the microwave or running outside butt-naked. She has always had a free spirit. Hope wears her heart on her sleeve, and she lives every moment with the most contagious passion. Watching her grow into a young adult has been an incredible experience.

Unfortunately, this past winter, my younger sister Hope was diagnosed with POTS, the same type of dysautonomia or, disruption of the autonomic nervous system that I have.  She is unable to attend school due to her illness and is missing her friends, soccer, and all of the normal 8th grade activities. We’re also concerned that it will continue to get worse as it did with me. If we get her treatment as soon as possible, she has a much better chance of making a full recovery from her condition.

There is not cure for POTS, but there is a one facility in the US that offers a unique treatment to help reduce the symptoms. The POTS Treatment Center in Dallas, Texas is the only medical center that offers an intense clinic of combined treatments including biofeedback, exercise and nutrition, treatment of the autonomic nervous system, physiological stress management, and regulation of the heart rate.

While a number of specialists have been treating me over the last 3 years, most of my relief seems to come from the alternative therapies such as acupuncture and massage. These therapies are not covered by insurance. Between the therapies, supplements, medications, and hospitals visits, the medical bills seem to be growing.

The clinic at the POTS Treatment Center is $5,000 per patient and is not covered by insurance. For both of us to attend the clinic plus travel, the costs are well over $10,000. The clinic has tentatively scheduled 2 weeks in May for my sister and I to go together if we are able to raise the money.

The POTS Treatment Center has proven to help so many people like us. There are many testimonials of young women just like me who went in requiring a wheelchair and came out after 2 weeks walking, without an aid! I think this treatment will help both me and Hope so that we can begin our lives again.

If you’d like to see some of the amazing testimonials from patients who attended this clinic, you can watch these on their website. I am hoping that in May you’ll see me and Hope on that list of testimonials!

http://www.potstreatmentcenter.com/

Any donation amount will help. Thank you for your support.

No comments:

Post a Comment