My Treatments

Through trial and error, the following listed seem to be the most beneficial for me. Here's what I've been doing to help manage. 
Diet
  • Gluten-Free (includes Wheat, Barely, Rye, and Oats)
  • Dairy-Free (includes Casein)
  • Low-Sugar 
  • Low-Yeast
  • High-Sodium 
  • High-Protein
  • LOTS of (distilled) water

Supplements


    • Berbercap - 2 capsules, 2x a day
      • Berberine - 200 mg
        • Helps restore good bacteria in the stomach lining.
    • Cellular Forte - 2 capsules, 2x a day, with food
      • Calcium - 130 mg
      • Phosphorus - 190 mg
      • Magnesium - 40 mg
      • IP-6 (inositol hexaphosphate) - 800 mg
      • Inositol - 220 mg
        • Increases natural killer-cell activity, helps immune system and to regulate healthy cell growth
    • Co-Adren - 1 capsule in the am, 1 capsule at noon
      • Vitamin A - 500 IU
      • Vitamin C - 200 mg
      • Vitamin E - 20 IU
      • Niacin USP - 20 mg
      • Vitamin B6 - 30 mg
      • Vitamin B12 - 200 mcg
      • Pantothenic Acid - 350 mg
      • Adrenal Concentrate (Bovine) - 220 mg
      • Eleuthero Root Extract - 100 mg
      • Rhodiola rosea Root Extract - 100 mg
      • Schizandra Berry Extract - 100 mg
      • Licorice Root Extract - 75 mg
        • Adrenal support and function
    • DHEA - 1 capsule a day
      • DHEA - 5 mg
      • Superoxide Dismutase - 50 mg
      • Catalase - 50 mg
        • Hormone Support
    • Dofus - 2 capsules, empty stomach
      • 10:1 ratio of Lactobacillus Acidophilus to Lactobacillus Bifidus 
        • Helps restore natural bacteria in the stomach.
    • GoldenZyme - 1 capsule with meals 
      • Amylase - 5000 DU
      • Lactase - 1250 ALU
      • Alpha-galactosidase - 100 GaIU
      • Protease 4.5 - 4500 HUT
      • Protease 6.0 - HUT
      • Glucoamylase - 8 AGU
      • Hemicellulase, betaglucanase, phytase - 6 mg
      • Peptidase - 1250 HUT
      • Lipase - 150 FIP
      • Malt Diastase - 150 DP
      • Cellulase 125 CU
      • Invertase 125 SU
        • Aids digestion and nutrition absorption. 
    • Mag Malate Plus - 1 capsules, 2x a day
      • Vitamin B6 - 5 mg
      • Pholate - 400 mcg
      • Magnesium - 500 mg
      • Malic Acid - 2,750 mg
        • Promotes energy while maintaining muscle, bone, and nerve function.
    • Mitomax NT- 3 capsules, 2x a day
      • Vitamin E - 25 iu
      • Calcium - 160 mg
      • Phosphorus - 50 mg
      • Magnesium - 50 mg
      • Alpha-Ketoglutaric Acid - 120 mg
      • L-Carnitine L-Tartrate - 100 mg
      • L-Tyrosine - 60 mg
      • Pantethine - 50 mg
      • Proprietary NT Blend - 1,350 mg
      • Inositol - 220 mg
        • Boosts energy and mitochondrial function. 
    • Thorne Forumla SF722 - 3 capsules, 2x a day, with food
      • 10-Undecenoic Acid - 50 mg
        • Reduces the yeast amount in stomach, helps restore natural bacteria. 
    • L-Glutamine - 2 capsules, 2x a day, without food
      • L-Glutamine - 1000 mg
        • Free form amino acid, restores stomach lining.
    • Lipoic Acid Supreme - 1 capsule a day
      • Biotin - 4 mg
      • Taurine - 500 mg
      • Alpha Lipoic Acid - 300 mg
        • Antioxidant
    • Vitamin D3 - 2 drops a day
      • 4000 IU
    • Vitaline CoQ10 - 1 capsule a day
      • Coenzyme Q10 - 200 mg
        • Increases serum levels of CoQ10, supports mitochondrial function.

    Medications
    •  Celebrex - 1 [100mg], 3x a day
      • Treatment for pain
    • Elmiron - 1 [100 mg] tablet, 3x a day
      • Treatment for Interstitial Cystitis
    •  Fludrocortisone (Florinef) - 1 [0.1mg] tablet, 2x a day
      • Corticosteroid, treatment for POTS
    • Neurontin - 1 [300 mg] tablet, 3x a day
      • Treatment for pain caused by Peripheral Neuropathy
    • Dicyclomine - 1 [20 mg] tablet, 4x a day, as needed
      • Relief from food reactions
    • Tramadol HCL (Ultram) - 1/2 - 1 [50 mg] tablet, as needed
      • Pain Relief
    • Promethazine (Phen-Tuss, Phenergan) - 1 [25 mg] tablet, as needed 
      • Treatment for Nausea, relief from allergic reactions
    • Ondansetron HCL (Zofran) - 1 [4mg] tablet, as needed
      • Treatment for nausea and vomiting
    • Meclizine - 1 [25 mg] tablet, as needed
      • Treatment for nausea and motion sickness

      Other


      • Triiodo-l-Thyronine SOD - 2 capsules a day
        • Thyroid Supplement, Hormone T3
          • Self Injections - once a day, as needed
            • B-12 (methylcobalamin) - 1000cc
          • Low-level LED Light Therapy - 20-30 minutes, at least once a day
            • Relief from Peripheral Neuropathy
          • IV Therapy - Every week
            • Helps get by week to week to keep blood volume up



          7 comments:

          1. I've been thinking about it lately. How hard would it be to go completely (gluten and dairy)-free?

            ReplyDelete
          2. For me, it was a huge change. My normal diet was considerably healthy, but I still ate gluten and dairy. Many foods we buy at the store pre-made have gluten in them. Dairy seems to be a key ingredient in most recipes. I found it very hard to try and completely eliminate gluten and dairy from my diet because they are sometimes hidden in foods that you wouldn't expect them to be in. You have to stay away from the obvious things like flour, bread, pasta, milk, and butter, but things like pre-packaged meats, salad dressings, and many more have gluten or dairy still in them. Cross contamination is a huge factor if you have an intolerance. If you go out to eat, gluten and dairy may still find its way into your meals without you knowing!
            Many believe that going gluten free makes them feel better all around. Even eliminating some of these foods can help. I suggest googling it and doing some research on your own! There are more and more options coming out for those affected by these intolerances. GOOD LUCK!

            ReplyDelete
          3. Hi Sara,
            I was on..
            Omeprazole DR (Prilosec) - 2 [40 mg] tablet a day
            ..as well for reflux. I did all the same diet changes that you have and they helped quiet a lot with the reflux but not completely.

            Then my Mum (gotta love mums) found info about the PRA Hospital diet (from Melbourne .AU). It's a diet that was started during a study on the effects of Aspirin in the stomach because they noticed the placebo was causing the same symptoms as the Aspirin. Turns out the placebo had a lot of carrot in it, which has a lot of salicylates in it. Long story short in all foods there are natural food chemicals and when I go me/cfs I also developed an intolerance to salicylates.

            By following the scientifically structured RPA diet (incredibly boring and bland) I have managed to get rid of all my reflux and slowly over a few months weaned myself off the Omeprazole. I now have no stomach meds and no reflux and am starting to reintroduce salicylates.

            You've probably tried just about everything but if you haven't tried this it's worth a shot. http://www.sswahs.nsw.gov.au/rpa/allergy/

            When I tell people about my food restrictions they are horrified..but seriously food is such minor issue compared to the effects of me/cfs and POTS on my life.

            Keep fighting like a girl :) and keep up the great blogging.

            ReplyDelete
          4. Hi Sara, I have 2 teenage daughters - one w/ ME/CFS and one w/ FM. I have both. Your treatment list here is AMAZING! It covers all of the same areas that my girls and I also suffer from. I have 2 questions for you if you would help me - that led light therapy..my 15 year old has been asking me to get one, as she suffers from SAD (seasonal affective disorder). Is there a specific kind I should order? I don't want to get her one that may expose her to too much "light", unknowingly.
            My other question is, do you have one dr. overseeing your treatment on this "list"? I'm not sure how to go about getting my girls started on some of these treatments - because I KNOW you are right - and I KNOW these treatments do NOT hurt but can only help!
            Such a great blog, Sara! Kudos to you for doing it.
            xo Peggy
            P.S. I've never responded to a "blog" before so I'm not sure I'm doing this right...as far as selecting a "profile"??
            And my girls aren't around to help me ;)

            ReplyDelete
          5. Sarah - Thank you for the link! I live in the US.. but I'm reading into this now. Hope you're feeling as well as possible!

            Peggy - First, thank you for reading my blog! I hope you can find some relief for your daughters.
            I'm not sure of the specific wave length of the LED lights.. you can email my mom (jen@totalcontact.com) for some of the details. I do know it's the RED LED light that helps me the most.
            I have one doctor that is over looking my case, but I have received prescriptions from other doctors. Example: my Florinef is from my cardiologist, my birth control is from my gynecologist, etc
            & great job commenting on the blog! ;)
            Thanks again!

            ReplyDelete
          6. Wow, that's quite a list, Sara. You seem to have all the critical areas covered - I'm very impressed! Did you know that Mg also helps with pain and with sleep?

            We take loads of supplements, too - literally dozens of pills each day - but many of ours are single ingredients whereas I see you use several combination products - maybe we should try that to cut down on the number of pills we take. Is there a particular place where you get your supplements, like MitiMax NT or CoAdren?

            And which of these have you noticed has made the most difference for you?

            Glad you have found some treatments that help.

            Sue

            ReplyDelete
          7. Hi Sara, I hope that everything you are doing works in perfect synergy and you start feeling great! I am wondering where you get your self-injections from?

            ReplyDelete